About a month ago, I contacted the boys’ pediatrician to get her advice about sending them back to school this fall since our youngest is...

My first Cure CMD conference memories actually pre-date Cure CMD and the conferences themselves. In the early 2000s, when I was around...

Living with Congenital Muscular Dystrophy (CMD) can sometimes feel like a battle with an invincible enemy that's inside of me all the...

Everyone has a defining moment in their lives that shapes their entire future. For me, that moment came when I was about 6 years old. I...

An all-virtual conference will cover care and research, and events for kiddos! It’s been way too long since July 2019, when many of us...

Record Your Child’s Development When my kids were born, the age of smartphones and apps was just beginning. I would have loved to have...

Use the template here to urge your Congressperson to support it! In 1983, the U.S. Congress passed The Orphan Drug Act, a law that...

Spruced up in time for virtual SciFam 2021! Noticed anything new about the Cure CMD logo? Last year’s challenges asked us to look and...

Six Things I Have Learned While Raising Two Boys with SEPN1 Related Myopathy The questions “Why?” and “Why me?” cannot be answered. Some...

When various COVID-19 vaccines started to roll out in December 2020, I was thrilled like many people. I also knew that there was going to...

We recently met with members of the Curley family, new members of the Cure CMD community. We asked them to share their story with you! If...

Any type of therapy (physical, speech, occupational, etc.) is more engaging for children when approached as playtime, especially if it...