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Refreshing Logo, Isn’t It?
Spruced up in time for virtual SciFam 2021! Noticed anything new about the Cure CMD logo? Last year’s challenges asked us to look and...
Cure CMD
Apr 30, 20211 min read


Six Things
Six Things I Have Learned While Raising Two Boys with SEPN1 Related Myopathy The questions “Why?” and “Why me?” cannot be answered. Some...
Lani Knutson, Advocacy Team Leader
Apr 5, 20212 min read


Getting my COVID vaccine
When various COVID-19 vaccines started to roll out in December 2020, I was thrilled like many people. I also knew that there was going to...
Luke Hoban
Feb 25, 20213 min read


Taking It One Day At A Time
We recently met with members of the Curley family, new members of the Cure CMD community. We asked them to share their story with you! If...
Cure CMD
Feb 3, 20212 min read


Making Respiratory Muscle Training Fun?
Any type of therapy (physical, speech, occupational, etc.) is more engaging for children when approached as playtime, especially if it...
Lani Knutson, Advocacy Team Leader
Feb 3, 20211 min read


Meet Jaclyn: Scientist, Affected Individual and Advocate
Jaclyn Prystupa was always interested in science. In school, biology was her favorite subject, and the Saskatchewan Science Centre was...
Terry Selucky
Feb 3, 20215 min read


Three Days of Teaching Future Doctors
CMD has given me many things throughout my life: A wonderful community and the ability to play wheelchair hockey are at the top of the...
Luke Hoban
Feb 1, 20213 min read


KSSK CMD Chats: Pulmonary Web Series World Premiere
Registration open now World Premiere + Live Q&A on December 27, 2020 Many people affected by neuromuscular disorders may not know that...
Terry Selucky
Dec 17, 20203 min read


How Standing Up for Myself Helped Me Survive COVID-19
I was born in 1976 and my parents always knew some things were different, but my physical anomalies were always blamed on a birth...
Cure CMD
Dec 10, 20206 min read
Holding our Breath
We wind our way up the parking ramp at Children’s of Wisconsin every six months. After parking, we make the long trek on foot through the...
Lani Knutson, Advocacy Team Leader
Nov 10, 20202 min read


Pandemic Academics
It is that time of the century, about twenty years in, for our regularly scheduled once-in-a-lifetime global pandemic. A pandemic is a...
Kierra Sunris
Oct 31, 20203 min read


Sporting a Love for Sports (Part 2) - A Passion for Power Hockey
Check out Part 1 of Paul's 2-part series There are some days that leave a lasting mark on your life. Years later you’re able to look back...
Paul Desaulniers
Oct 28, 20204 min read
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