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Liam: A Rare College Experience Featured On The Disorder Channel
We are thrilled to announce that the 2019 Cure CMD-produced documentary, Liam: A Rare College Experience, is now streaming on The...
Terry Selucky
Sep 3, 20211 min read


The Benefits of Legacy Giving
Everyone has something they are passionate about. If you are, or know, an individual affected by congenital muscular dystrophy, Cure CMD...
Cure CMD
Sep 3, 20212 min read


Caught Up on the Latest KSSK Episodes?
Our one-of-a-kind, educational, and entertaining web series demystifies pulmonary best care practices for those impacted by neuromuscular...
Terry Selucky
Sep 3, 20211 min read


Co-pay Assistance Programs Essential to Patients and Caregivers
Ohioans have been focused on protecting their family from the COVID crisis. But that is not the only public health crisis facing...
Cure CMD
Sep 3, 20213 min read


Congratulations Dr. Erdmann!
Congratulations CMD Researcher and Community Member, Dr. Jeannette Erdmann! We are thrilled to share that CMD researcher and...
Terry Selucky
Aug 30, 20212 min read


The Asterisk
About a month ago, I contacted the boys’ pediatrician to get her advice about sending them back to school this fall since our youngest is...
Lani Knutson, Advocacy Team Leader
Aug 27, 20213 min read


Looking Forward to SciFam
My first Cure CMD conference memories actually pre-date Cure CMD and the conferences themselves. In the early 2000s, when I was around...
Luke Hoban
May 19, 20212 min read


I Am No Sob Story
Living with Congenital Muscular Dystrophy (CMD) can sometimes feel like a battle with an invincible enemy that's inside of me all the...
Cure CMD
May 15, 20213 min read


That Defining Moment by Simon Cantos
Everyone has a defining moment in their lives that shapes their entire future. For me, that moment came when I was about 6 years old. I...
Cure CMD
May 11, 20213 min read


SciFam 2021 is Around the Corner
An all-virtual conference will cover care and research, and events for kiddos! It’s been way too long since July 2019, when many of us...
Cure CMD
Apr 30, 20212 min read


CDC’s Milestone Tracker
Record Your Child’s Development When my kids were born, the age of smartphones and apps was just beginning. I would have loved to have...
Cure CMD
Apr 30, 20211 min read


STAT Act Aims to Speed Treatments for Rare Disease
Use the template here to urge your Congressperson to support it! In 1983, the U.S. Congress passed The Orphan Drug Act, a law that...
Lani Knutson, Advocacy Team Leader
Apr 30, 20212 min read
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