This year, the MDBR's Team Cure CMD raised $140k for research.

Prof. Jeanette Erdmann, CMD Researcher and CMD-affected individual passed away unexpectedly after a tragic fall.

$482,000 Awarded for CMD Science We are thrilled to announce the newest round of research grants focused on congenital muscular...

On the road toward treatments and a cure for congenital muscular dystrophy, we’ve come a long, long way to learn about causes and...

Thanks to everyone who participated in our 2021 Virtual SciFam Conference. If you didn't get a chance to attend or watch recordings in...

Congratulations CMD Researcher and Community Member, Dr. Jeannette Erdmann! We are thrilled to share that CMD researcher and...

An all-virtual conference will cover care and research, and events for kiddos! It’s been way too long since July 2019, when many of us...

Jaclyn Prystupa was always interested in science. In school, biology was her favorite subject, and the Saskatchewan Science Centre was...

The CMDIR has launched on a new and improved platform! Your Data Has Power Large amounts of data about affected individuals allow...

This week, we’ve put a spotlight on families and individuals who share how Cure CMD and our community have made a difference in their...

Funding Continues in a Challenging Year

Pratteln, Switzerland, May 06, 2020 – Santhera Pharmaceuticals (SIX: SANN) announces the signing of two agreements with Rutgers, The...

After 11 Years, the Congenital Muscle Disease International Registry(CMDIR) is Getting an Upgrade If you’re part of the CMD community,...

With a record-breaking 30 CMD-focused research grant proposals in his inbox, Scientific Director Dr. Gustavo Dziewczapolski is quite busy...

Part 4: Fueling the Drug Development Engine Thanks for hanging in there, we’re almost to the end! In Parts 1 , 2 , and 3 , we’ve covered...

Part 3: Industry Will Get Us There In Part 2 , we talked about the first three steps of drug development. Now, let’s cover the rest. Step...

Part 2: The Journey Begins in a Lab In Part 1, we covered the basics of drug development, the reasons why we need a process to do so, and...

Part 1: How Did We Get Here? What is Drug Development? Drug Development is the process by which potential treatments discovered in a...

​Some Conditions Formerly Known as LGMDs have Newer, More Accurate, More Helpful Names This lay summary has been extracted from the peer...

A “Triad” of patient advocacy organizations for ultra-rare congenital muscular diseases, Cure CMD (Congenital Muscular Dystrophy), A...