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Advocacy Recap: May RDLA Monthly Webinar
May is Mental Health Awareness Month, the focus of Rare Disease Legislative Advocates (RDLA) monthly webinar. You can view the webinar...
Cure CMD
Jun 1, 2023


Cure CMD Partners with Patient Worthy
“We look forward to partnering with Patient Worthy, to create targeted and reliable community resources, and continue to grow awareness...
Cure CMD
May 3, 2023


Medicaid & CHIP Re-enrollment Returns!
As the United States ends its COVID 19 public health emergency, the continuous enrollment provision is coming to an imminent end....
Cure CMD
May 2, 2023


Never Too Old to Follow Your Dreams
During COVID, I had a bit of extra time on my hands and wanted to create something that was accessible and fun for everyone to play. One...
Cure CMD
Apr 27, 2023


Giving Appreciated Securities: One Way to Support Cure CMD
For members of the CMD ommunity who are charitably inclined, one giving option is donating shares of appreciated securities. Donating...
Cure CMD
Apr 10, 2023


Finding What Makes Me Feel Free
My name is Saif Aslam (under the pen name, Ud Din), a CMD community member, and am the author of What I Could’ve Been, a children’s book...
Cure CMD
Apr 10, 2023


Mom shares journey to accepting son’s CMD diagnosis
On April 29, 2016, Isaiah-Levi Anthony Johnson was pushed into this world. The nurse handed me my perfectly healthy baby. He was to be my...
Cure CMD
Mar 29, 2023


Cure CMD x Patients Rising to Provide Support
Cure CMD Partners with the Patient Helpline to Provide Support and Navigation Services LAKEWOOD, CA — March 27, 2023 — Cure CMD announces...
Cure CMD
Mar 27, 2023


Rare Disease Week on Capitol Hill 2023 Recap
In February 2023, members of the Cure CMD Advocacy Team joined 600 rare disease advocates from over 300 patient organizations in...
Lani Knutson, Advocacy Team Leader
Mar 13, 2023


"We Are Not Done Yet”: Remembering Disability Rights Activist, Judy Heumann
Judith “Judy” Heumann — widely regarded as “the mother” of the disability rights movement — passed away in Washington, D.C. on the...
Cure CMD
Mar 8, 2023


2023 #ShowYourStripes: My Disability Journey, The Gen Z Way
I thrive on the internet. On camera, especially. The phrase “chronically online” has been used widely throughout the past few years...
Kierra Sunris
Feb 28, 2023


Advocacy Team Preparing for RDW 2023
This week, members of the Cure CMD Advocacy Team will join hundreds of rare disease advocates in Washington D.C. for Rare Disease Week on...
Lani Knutson, Advocacy Team Leader
Feb 27, 2023
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