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Grateful for Our Supporters: Bequests and Other Planned Giving Opportunities
Cure CMD has been blessed with gifts in many forms over the years from friends, families, and others with a wide variety of connections...
Cure CMD
Jun 28, 2023


Cure CMD Releases New Film About the CMD Experience
Cure CMD's film, The Tenacity of Hope, features the raw and real experiences of those living with congenital muscular dystrophy.
Rachel Alvarez
Jun 13, 2023


Rachel Alvarez and Monkol Lek Featured On Story Collider: Against the Odds
Hear Rachel Alvarez and Mokol Lek share stories about navigating diagnosis and working for the neuromuscular community.
Cure CMD
Jun 13, 2023


Advocacy Recap: May RDLA Monthly Webinar
May is Mental Health Awareness Month, the focus of Rare Disease Legislative Advocates (RDLA) monthly webinar. You can view the webinar...
Cure CMD
Jun 1, 2023


Cure CMD Partners with Patient Worthy
“We look forward to partnering with Patient Worthy, to create targeted and reliable community resources, and continue to grow awareness...
Cure CMD
May 3, 2023


Medicaid & CHIP Re-enrollment Returns!
As the United States ends its COVID 19 public health emergency, the continuous enrollment provision is coming to an imminent end....
Cure CMD
May 2, 2023


Never Too Old to Follow Your Dreams
During COVID, I had a bit of extra time on my hands and wanted to create something that was accessible and fun for everyone to play. One...
Cure CMD
Apr 27, 2023


Giving Appreciated Securities: One Way to Support Cure CMD
For members of the CMD ommunity who are charitably inclined, one giving option is donating shares of appreciated securities. Donating...
Cure CMD
Apr 10, 2023


Finding What Makes Me Feel Free
My name is Saif Aslam (under the pen name, Ud Din), a CMD community member, and am the author of What I Could’ve Been, a children’s book...
Cure CMD
Apr 10, 2023


Mom shares journey to accepting son’s CMD diagnosis
On April 29, 2016, Isaiah-Levi Anthony Johnson was pushed into this world. The nurse handed me my perfectly healthy baby. He was to be my...
Cure CMD
Mar 29, 2023


Cure CMD x Patients Rising to Provide Support
Cure CMD Partners with the Patient Helpline to Provide Support and Navigation Services LAKEWOOD, CA — March 27, 2023 — Cure CMD announces...
Cure CMD
Mar 27, 2023


Rare Disease Week on Capitol Hill 2023 Recap
In February 2023, members of the Cure CMD Advocacy Team joined 600 rare disease advocates from over 300 patient organizations in...
Lani Knutson, Advocacy Team Leader
Mar 13, 2023
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