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Cure CMD x Patients Rising to Provide Support
Cure CMD Partners with the Patient Helpline to Provide Support and Navigation Services LAKEWOOD, CA — March 27, 2023 — Cure CMD announces...
Cure CMD
Mar 27, 20233 min read


Rare Disease Week on Capitol Hill 2023 Recap
In February 2023, members of the Cure CMD Advocacy Team joined 600 rare disease advocates from over 300 patient organizations in...
Lani Knutson, Advocacy Team Leader
Mar 13, 20233 min read


"We Are Not Done Yet”: Remembering Disability Rights Activist, Judy Heumann
Judith “Judy” Heumann — widely regarded as “the mother” of the disability rights movement — passed away in Washington, D.C. on the...
Cure CMD
Mar 8, 20232 min read


2023 #ShowYourStripes: My Disability Journey, The Gen Z Way
I thrive on the internet. On camera, especially. The phrase “chronically online” has been used widely throughout the past few years...
Kierra Sunris
Feb 28, 20233 min read


Advocacy Team Preparing for RDW 2023
This week, members of the Cure CMD Advocacy Team will join hundreds of rare disease advocates in Washington D.C. for Rare Disease Week on...
Lani Knutson, Advocacy Team Leader
Feb 27, 20231 min read


Cure CMD Awarded MDA Advocacy Grant
Cure CMD is excited to be a recipient of the Muscular Dystrophy Association's 2023 Advocacy Collaboration grant. This award will be used...
Cure CMD
Feb 17, 20232 min read


Use Your Voice for Change
In 2022, Cure CMD's Legislative Advocacy Team continued to support legislation that provides access to healthcare, education, employment,...
Doenica Palacio
Feb 15, 20231 min read


2023 Rare Disease Week
For the first time since 2020, 2023 Rare Disease Week on Capitol Hill will happen in person, in Washington D.C., from February 28 to...
Lani Knutson, Advocacy Team Leader
Feb 15, 20231 min read


2022 SciFam Conference Recordings
A big Thank You to everyone who participated in our 2022 Scientific and Family Conference! If you did not have the opportunity to...
Cure CMD
Feb 15, 20231 min read


Webinar Series
Get Caught Up on our Webinar Series Our goal at Cure CMD is to bring you educational content relatable to your CMD journey to support...
Doenica Palacio
Feb 15, 20231 min read


What's the Problem?
Through my myriad of experiences over many years, my eyes have been opened to the astounding and vast diversity of people. Specifically,...
Lani Knutson, Advocacy Team Leader
Feb 12, 20233 min read
Creating pathways to LGMD genetic diagnosis: Spotlight on LGMD Grant Award recipient Cure CMD
Cure CMD is the fortunate recipient of a grant from Sarepta Therapeutics to promote genetic testing in the LGMDs. Limb-girdle muscular...
Cure CMD
Feb 7, 20234 min read
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