Cure CMD’s 2026 Virtual CMD Advocacy Event brought together advocates to share their stories, meet with congressional offices, and raise awareness of issues affecting the CMD community.

Learn how the new Medicaid work requirement rule could impact individuals living with congenital muscular dystrophy (CMD), what exemptions may apply, and how your voice can protect access to essential services.

Cure CMD joined rare disease advocates in Washington, DC for Rare Disease Week 2026, meeting with lawmakers to raise awareness of congenital muscular dystrophy and the urgent need for research support.