Learn how the new Medicaid work requirement rule could impact individuals living with congenital muscular dystrophy (CMD), what exemptions may apply, and how your voice can protect access to essential services.

Ashley Burkman shares how testifying for Medicaid highlighted the daily reality of CMD caregiving and how honest storytelling can drive advocacy and change.

Cure CMD joined rare disease advocates in Washington, DC for Rare Disease Week 2026, meeting with lawmakers to raise awareness of congenital muscular dystrophy and the urgent need for research support.