Why does advocacy matter for people living with congenital muscular dystrophy? Cure CMD’s Avery Roberts shares what she learned from national rare disease advocacy conversations and why affected individuals and families deserve a meaningful role in shaping research, treatment, care, and policy.

Learn how the new Medicaid work requirement rule could impact individuals living with congenital muscular dystrophy (CMD), what exemptions may apply, and how your voice can protect access to essential services.

Ashley Burkman shares how testifying for Medicaid highlighted the daily reality of CMD caregiving and how honest storytelling can drive advocacy and change.