Terry SeluckyAug 18, 20185 min read2018 Team Cure CMD - Million Dollar Bike Ride Raises $100k for Collagen VI ResearchCure CMD has great news! Earlier this year, we shared about the Million Dollar Bike Ride, an annual event held at PENN Orphan Disease...
Terry SeluckyMar 27, 20184 min readParents Raise Money for Rare Disease Research Through the Million Dollar Bike Ride at PENN Orphan DiParents of children and young adults with the rare disease Congenital Muscular Dystrophy (CMD), Susan Lee-Miller, Andy Parks, and Diane...
Cure CMDJan 27, 20183 min readMathea Manley Representing the CMD Community at Rare Disease Week on Capitol HillAt the end of next month, Matty will travel to Washington D.C. to represent the CMD community and advocate for congenital muscular...
Cure CMDJan 27, 20182 min readMegan Meyer Representing the CMD Community at Rare Disease Week on Capitol HillAt the end of next month, Megan will travel to Washington D.C. to represent the CMD community and advocate for congenital muscular...