These resources can give insight on how to navigate the healthcare system as a disabled individual. • Transitioning to Adulthood(https://www.ultrarareadvocacy.com/transitioning-to-adulthood/) • Global Genes Financial Advocacy In RARE: Young Adult Resource Guide(https://globalgenes.happyfox.com/kb/article/270-financial-advocacy-in-rare-navigating-the-u-s-health-system-for-young-adults/?eType=EmailBlastContent&eId=b2ba7b80-46da-4498-add8-3871fb888957) • Transitioning from Pediatric to Adult Care with a Rare Disease(https://raredisease.net/clinical/transitioning-to-adult-care)

Thriving while attending school with a disability can be tricky. Below are resources that can help you have a successful educational career and get through the long journey while still thriving. • IEPs and 504s: Getting the most from Public School and Support(https://www.youtube.com/watch?v=wwwmKI0GGNQ) • New Mobility's Wheels on Campus: The First College Guide for Wheelchair Users(https://newmobility.com/college-guide-for-wheelchair-users/) • Cure CMD Webinar: Young Adult Educational Transitions(https://www.youtube.com/watch?v=NtRnG6RQSyQ) • "College Search", A Cure CMD Blog by S(https://www.curecmd.org/post/college-search)arah Foye(https://www.curecmd.org/post/college-search) • Liam: A Rare College Experience(https://www.youtube.com/watch?v=cpjneM9HVVA) • "Academic Advocacy," A Cure CMD Blog by K(https://www.curecmd.org/post/academic-advocacy)ierra Sunris(https://www.curecmd.org/post/academic-advocacy) • "011 - Back to School" Two Rare Mama Bears, a Cure CMD Podcast(https://open.spotify.com/episode/0dcOHuL22SoGUqbCbWF7Vo?si=VeL7IekiQDeapZIwxpIGRA&dl_branch=1&nd=1) • "004 - [Angela] Young Adults & Transitioning to College" Two Rare Mama Bears, a Cure CMD Podcast(https://open.spotify.com/episode/1EJAIBK95pcHp7VrRzVjXI?si=67bee9e500cb4a0f&nd=1) • Cerebral Palsy Special Education | Options for Your Child(https://www.cerebralpalsyguide.com/community/special-education/) • Accessible College Partnership with the Reeve Foundation(https://accessiblecollege.com/2021/07/27/accessible-college-christopher-dana-reeve-foundation-partnership-continues/) • Navigating the Transition to College with Paralysis(https://s3.amazonaws.com/reeve-assets-production/Navigating-and-Transitioning-to-College-with-Paralysis.pdf) • A Wheelchair User's Guide to Preparing for College and How to Secure Housing and Manage PCA Services at College(https://accessiblecollege.com/2022/03/08/wheelchair-college/) • When Students with Health Conditions Transition to College(https://accessiblecollege.com/2019/06/24/when-students-with-health-conditions-transition-to-college/) • How Can Students with Health Conditions Successfully Navigate the College Transition?(https://accessiblecollege.com/2020/01/21/how-can-students-with-health-conditions-successfully-navigate-the-college-transition/) • Perkins School for the Blind-College Readiness Resource Center(https://www.perkins.org/college-success/resource-center/)

Transitioning between phases of life is hard, especially when it comes to growing up. These are resources that can guide you as you transition your way through life. • Got Transition®(https://gottransition.org/) • Helping Young People with Disabilities Successfully Transition to Adulthood(https://blog.ssa.gov/helping-young-people-with-disabilities-successfully-transition-to-adulthood/) • How to Help Students with Disabilities Transition to Adult Life(https://lesley.edu/article/how-to-help-students-with-disabilities-transition-to-adult-life) • Life Stages & Transitions(https://www.enablingguide.sg/disability-info/life-stages-transitions) • Transition Planning(https://www.arisecoalition.org/transition-planning.html)

How to handle finance as an affected individual (disability benefits, etc.) • Social Security Disability Tips(http://www.dysautonomiainternational.org/pdf/NOSSCRflyer.pdf) • Benefits and Financial Help in the UK(https://www.gov.uk/browse/disabilities/benefits) • Benefits for People with Disabilities(https://www.ssa.gov/disability/) • How To Get A Loan If You Are Receiving Disability Benefits(https://www.nerdwallet.com/uk/loans/personal-loans/loans-for-people-on-disability-explained/) • The Fully Accessible Guide To Paying For College For Students With Disabilities(https://www.bankrate.com/loans/student-loans/guide-to-paying-for-college-with-disabilities/) • Overview of Medicaid Waiver Programs (for every state)(https://www.kidswaivers.org/) • USAGov's Official Guide to Disability Services(https://www.usa.gov/disability-services?_gl=1*k9bj1p*_ga*MTUxNzQ0OTk4Ny4xNjk1Nzc4MzAy*_ga_GXFTMLX26S*MTY5NTc3ODMwMi4xLjEuMTY5NTc3ODU0NC4wLjAuMA..)

Here are some resources about modifications you can make to your home to suit your needs and wants. • Home Modifications - Americans for Independent Living (https://www.afil.org/home-modifications/) • A Guide to Homeownership Programs for People with Disabilities (https://www.moneygeek.com/mortgage/homeownership-for-people-with-disabilities/) • Disability Housing Programs and Resources for Adults With Special Needs (https://www.fiscaltiger.com/disability-housing-programs-resources-adults/) • Assisted Living Options for Young Adults With Disabilities (https://www.verywellhealth.com/assisted-living-options-1094357) • Housing Resources for People With Disabilities (https://uphomes.com/blog/homebuyers-with-disabilities/) • Home Improvements for people with Disabilities (https://www.bankrate.com/homeownership/home-improvements-for-people-with-disabilities/) • Administration for Community Living's Directory for Centers for Independent Living (https://acl.gov/programs/centers-independent-living/list-cils-and-spils)

Transportation & disability is a tricky concept. Here are a variety of topics that can help you understand driving and getting around with CMD. • Adaptive Driving Alliance(http://www.adamobility.com/) • Controls: *NOTE: These links are for advanced controls. The companies that provide the adapted vehicles help you with mechanical hand controls - EMC​(https://electronicmobilitycontrols.com/) - Paravan(https://www.paravan.com/) • Wheelchair Lockdown Systems: - EZ Lock​(http://www.ezlock.net/) - Q'Straint(https://www.qstraint.com/) • Adapted Vehicles:(https://www.gov.uk/transport-disabled) (*NOTE: Every automaker has a mobility section that can provide rebates for adapted equipment. We only provided the link for the automakers that produce vehicles that can be converted for wheelchair accessibility) - Braunability​,(https://www.braunability.com/us/en.html) VMI,(https://www.vantagemobility.com/) Rollx,(https://www.rollxvans.com/) Freedom Motors,(https://www.freedommotors.com/handicap-vehicles-for-sale/?keyword=wheelchair%20accessible%20van&utm_feeditemid=&utm_device=c&utm_term=wheelchair%20accessible%20van&utm_source=google&utm_medium=ppc&utm_campaign=NE+-+Broad+Match+-+Beta&hsa_cam=20558123721&hsa_grp=155307731164&hsa_mt=b&hsa_src=g&hsa_ad=674371909645&hsa_net=adwords&hsa_kw=wheelchair%20accessible%20van&hsa_tgt=kwd-295094761390&hsa_ver=3&gclid=Cj0KCQjwpc-oBhCGARIsAH6ote81KDVpiIzLfduLSNcxSXFfRm-l3S9_l5JzHt4toRH-eDYZ1bKvJSkaAtBwEALw_wcB) ATC,(https://www.atconversions.com/) AMS,(https://www.amsvans.com/) Toyota Mobility,(https://www.toyotamobility.com/mobility-solutions/wheelchair-accessible) Honda Mobility,(https://www.honda.com/) Chrysler Mobility,(https://www.chrysler.com/) Ford Accessibility,(https://www.fordupfits.com/accessibility/) General Motors(https://www.gmenvolve.com/fleet/vehicles/upfit-applications/accessible-vehicles) • Mobility Works(https://www.mobilityworks.com/) • Adaptive Equipment Funding | Ford Accessibility Program(https://www.fordupfits.com/accessibility/assessment/adaptive-equipment-funding/) • Disability & Driving in the UK(https://www.gov.uk/transport-disabled) • Transport Support Services for Disabled People in the UK(https://www.gov.uk/transport-disabled) • "009 - Traveling with a Disability" Two Rare Mama Bears, a Cure CMD Podcast(https://open.spotify.com/episode/4gcff3McFsOdE02s2dsyp3?si=bb9b5bbd02444b6b&nd=1) • "006 - Adaptive Driving and Adaptive Vehicles - Simon Cantos" Two Rare Mama Bears, a Cure CMD Podcast(https://open.spotify.com/episode/1mxYb1vnu6ajLFG8M7HUWS?si=3c4b1280ffd44538&nd=1)

Community is an amazing thing. The definition of the word, community: a feeling of fellowship with others, as a result of sharing common attitudes, interests, and goals. Below are great organizations that have organized supportive people and gatherings. • Our Odyssey's Virtual Meet-Ups(https://ourodyssey.org/virtual-meet-ups) • Young Adult Representatives of RDLA (YARR)(https://everylifefoundation.org/young-adult-representatives/) • Cure CMD Peer-to-Peer Match & Mentorship(https://www.curecmd.org/community-peer-match)

As someone with CMD, it can be hard to thrive without the help of others. Here is how to live your truth as your own person. • Taking Control: Gaining Independence as a Young Adult with a Rare Disease(https://globalgenes.org/wp-content/uploads/2014/07/GG_toolkit_nine_20140725_web.pdf) • Careers in the UK(https://www.gov.uk/browse/disabilities/carers) • Disability Equipment in the UK(https://www.gov.uk/browse/disabilities/equipment) • Directory of Disability Service Offices(https://www.nasddds.org/state-agencies/) • State Vocational Rehabilitation Agencies(https://rsa.ed.gov/about/states)

• CMD Community Member's TikTok Accumulates Over 40,000 Followers(https://www.curecmd.org/post/student-tiktok-accumulates-over-400-000-followers) • Three Days of Teaching Future Doctors(https://www.curecmd.org/post/three-days-of-teaching-future-doctors) • How I Made the Official Cure CMD App(https://www.curecmd.org/post/official-cure-cmd-app) • Cure CMD Community Member Makes Her School Research Project Relate to Her Personally(https://www.curecmd.org/post/meet-molly-wagner) • Community Member, Jonathan Lengel, in the Netflix movie: 13: The Musical(https://www.forbes.com/sites/keelycatwells/2022/08/01/jonathan-lengel-makes-debut-performance-in-netflixs-movie-adaption-of-13-the-musical/?sh=73f4babd115e) • Quest Magazine Features Community Member, Justin Moy, and His Journey Pursuing a Career in STEM(https://www.mda.org/quest/article/profiles-in-stem) • 'Ordinary Joe' Actor with MD Brings Life to TV Character With Disability(https://musculardystrophynews.com/news/ordinary-joe-actor-md-brings-life-tv-character-disability/) • Annie Live!: My First-Hand Experience in a Television Production(https://www.curecmd.org/post/annie-live-my-first-hand-experience-in-a-television-production) • Netflix's 'The Healing Powers of Dude' Sophie Kim and abilityE(https://abilitymagazine.com/netflixs-the-healing-powers-of-dude-sophie-kim-and-abilitye/) • "031 - Wheelchair Rapunzel...Inclusion, self-love & body positivity with Instagram Blogger, Alex Dacy" Two Rare Mama Bears, a Cure CMD Podcast(https://open.spotify.com/episode/2i3yPIeE3KFkQc5mAzcZko?si=o5EBDXLqRJyq8dzE8stAEw&dl_branch=1&nd=1)