Young Adult Resources
Being young adults with a rare disease ourselves, we think about our future a lot.
We want to help the CMD community navigate and interpret these often tricky concepts with useful tips and tricks for transitioning into this new and sometimes intimidating chapter of our lives.
-Avery Roberts & Kierra Sunris
Young Adult Community Members









Healthcare System
These resources can give insight on how to navigate the healthcare system as a disabled individual.
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Global Genes Financial Advocacy In RARE: Young Adult Resource Guide
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Living with a Rare Disease: The Transition from Pediatric to Adult Care During a Clinical Trial
Education
Thriving while attending school with a disability can be tricky. Below are resources that can help you have a successful educational career and get through the long journey while still thriving.
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New Mobility's Wheels on Campus: The First College Guide for Wheelchair Users
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"011 - Back to School" Two Rare Mama Bears, a Cure CMD Podcast
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"004 - [Angela] Young Adults & Transitioning to College" Two Rare Mama Bears, a Cure CMD Podcast
Transitions
Transitioning between phases of life is hard, especially when it comes to growing up. These are resources that can guide you as you transition your way through life.
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Helping Young People with Disabilities Successfully Transition to Adulthood
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How to Help Students with Disabilities Transition to Adult Life
Finance
How to handle finance as an affected individual (disability benefits, etc.)
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Financial Assistance and Support Services for People with Disabilities
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The Fully Accessible Guide To Paying For College For Students With Disabilities
Housing
Here are some resources about modifications you can make to your home to suit your needs and wants.
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A Guide to Homeownership Programs for People with Disabilities
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Disability Housing Programs and Resources for Adults With Special Needs
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Administration for Community Living's Directory for Centers for Independent Living
Transportation
Transportation & disability is a tricky concept. Here are a variety of topics that can help you understand driving and getting around with CMD.
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Wheelchair Lockdown Systems:
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"009 - Traveling with a Disability" Two Rare Mama Bears, a Cure CMD Podcast
Recreation/Community
Community is an amazing thing. The definition of the word, "community": a feeling of fellowship with others, as a result of sharing common attitudes, interests, and goals. Below are great organizations that have organized supportive people and gatherings.
Independence
As someone with CMD, it can be hard to thrive without the help of others. Here is how to live your truth as your own person.
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Taking Control: Gaining Independence as a Young Adult with a Rare Disease
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Spain Fact Sheet on Social Care & Support Services Sector for People with Disabilities
Look at what young adults in the CMD Community have accomplished!
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CMD Community Member's TikTok Accumulates Over 40,000 Followers
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Cure CMD Community Member Makes Her School Research Project Relate to Her Personally
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Community Member, Jonathan Lengel, in the Netflix movie: 13: The Musical
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Quest Magazine Features Community Member, Justin Moy, and His Journey Pursuing a Career in STEM
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'Ordinary Joe' Actor with MD Brings Life to TV Character With Disability
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Annie Live!: My First-Hand Experience in a Television Production
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Netflix's 'The Healing Powers of Dude' Sophie Kim and abilityE