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Young Adult Resources
- Avery Roberts & Kierra Sunris
Young Adult Community Members
Being young adults with a rare disease ourselves, we think about our future a lot.
We want to help the CMD community navigate and interpret these often tricky concepts with useful tips and tricks for transitioning into this new and sometimes intimidating chapter of our lives.
These resources can give insight on how to navigate the healthcare system as a disabled individual.Transitioning to AdulthoodTransitioning from Pediatric to Adult Care with a Rare Disease
Thriving while attending school with a disability can be tricky. Below are resources that can help you have a successful educational career and get through the long journey while still thriving.IEPs and 504s: Getting the most from Public School and SupportNew Mobility's Wheels on Campus: The First College Guide for Wheelchair UsersCure CMD Webinar: Young Adult Educational Transitions"College Search", A Cure CMD Blog by Sarah FoyeLiam: A Rare College Experience"Academic Advocacy," A Cure CMD Blog by Kierra SunrisCerebral Palsy Special Education | Options for Your ChildNavigating the Transition to College with ParalysisA Wheelchair User's Guide to Preparing for College and How to Secure Housing and Manage PCA Services at CollegeWhen Students with Health Conditions Transition to CollegeHow Can Students with Health Conditions Successfully Navigate the College Transition?Perkins School for the Blind-College Readiness Resource Center
Transitioning between phases of life is hard, especially when it comes to growing up. These are resources that can guide you as you transition your way through life.Got Transition®Life Stages & Transitions
How to handle finance as an affected individual (disability benefits, etc.)Social Security Disability TipsBenefits and Financial Help in the UKBenefits for People with DisabilitiesUSAGov's Official Guide to Disability Services
Here are some resources about modifications you can make to your home to suit your needs and wants.Home Modifications - Americans for Independent Living A Guide to Homeownership Programs for People with Disabilities Assisted Living Options for Young Adults With Disabilities Housing Resources for People With Disabilities
Transportation & disability is a tricky concept. Here are a variety of topics that can help you understand driving and getting around with CMD.Adaptive Driving AllianceControls: *NOTE: These links are for advanced controls. The companies that provide the adapted vehicles help you with mechanical hand controls - EMC - ParavanWheelchair Lockdown Systems: - EZ Lock - Q'StraintAdapted Vehicles: (*NOTE: Every automaker has a mobility section that can provide rebates for adapted equipment. We only provided the link for the automakers that produce vehicles that can be converted for wheelchair accessibility) - Braunability, VMI, Rollx, Freedom Motors, ATC, AMS, Toyota Mobility, Honda Mobility, Chrysler Mobility, Ford Accessibility, General MotorsMobility WorksDisability & Driving in the UKTransport Support Services for Disabled People in the UK
Community is an amazing thing. The definition of the word, community: a feeling of fellowship with others, as a result of sharing common attitudes, interests, and goals. Below are great organizations that have organized supportive people and gatherings.Young Adult Representatives of RDLA (YARR)Cure CMD Peer-to-Peer Match & Mentorship
As someone with CMD, it can be hard to thrive without the help of others. Here is how to live your truth as your own person.Taking Control: Gaining Independence as a Young Adult with a Rare DiseaseCareers in the UKDisability Equipment in the UKDirectory of Disability Service OfficesState Vocational Rehabilitation Agencies
CMD Community Member's TikTok Accumulates Over 40,000 FollowersThree Days of Teaching Future DoctorsHow I Made the Official Cure CMD AppCure CMD Community Member Makes Her School Research Project Relate to Her PersonallyCommunity Member, Jonathan Lengel, in the Netflix movie: 13: The MusicalQuest Magazine Features Community Member, Justin Moy, and His Journey Pursuing a Career in STEM'Ordinary Joe' Actor with MD Brings Life to TV Character With DisabilityAnnie Live!: My First-Hand Experience in a Television ProductionNetflix's 'The Healing Powers of Dude' Sophie Kim and abilityE









Have a great resource you'd like to share? Get in touch!
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