Community Member Becomes CMD Advocate
Rob Sunris, CMD community member, is father to two great kids, and lives with his family in North Carolina. Global Genes hosted their 7th annual Rare Patient Advocacy Summit this October 3rd and 4th in Irvine, California. This was my first conference of this type, and I was thrilled to attend as a father of a child with congenital muscular dystrophy. I went to gain a deeper understanding of the science and research taking place to help me be a better fundraiser and advocate.