top of page

Get Involved:
Legislative Advocacy

Register in the CMDIR

The Congenital Muscle Disease International Registry (CMDIR) has been relaunched to better serve researchers and participants. Your enrollment is critical to advancing treatments.

Kemaladewi Lab at the University of Pittsburgh

Kemaladewi lab.jpg

Advance Research

With support from generous supporters since 2008, we've funded more than $3M in research and launched 2 clinical trials. Join us in advancing treatments for CMD.

Optimize Care

Learn from experts on how to ensure the best possible health outcomes, which areas of care are critical for each subtype, and share our care guides with your care team.

cmd congenital muscular dystrophy family guide

Demystifying Pulmonary Care

Learn about the most important aspects of pulmonary care from the perspective of two affected teens.

News, Stories and Events by and for the CMD Community

Double the impact of your gift!
Check to see if your employer offers a donation match

bottom of page