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Join the 2023 Research Roundtable
Become an active voice in
determining treatment priorities
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Register in the CMDIR
The Congenital Muscle Disease International Registry (CMDIR) has been relaunched to better serve researchers and participants. Your enrollment is critical to advancing treatments.
Kemaladewi Lab at the University of Pittsburgh
Optimize Care
Learn from experts on how to ensure the best possible health outcomes, which areas of care are critical for each subtype, and share our care guides with your care team.


Demystify Pulmonary Care
Learn about the most important aspects of pulmonary care from the perspective of two affected teens.
News, Stories and Events by and for the CMD Community
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