Register in the CMDIR

The Congenital Muscle Disease International Registry (CMDIR) has been relaunched to better serve researchers and participants. Your enrollment is critical to advancing treatments.

Advance Research

With support from generous supporters since 2008, we've funded more than $3M in research and launched 2 clinical trials. Join us in advancing treatments for CMD.

Optimize Care

Learn from experts on how to ensure the best possible health outcomes, which areas of care are critical for each subtype, and share our care guides with your care team.

Demystify Pulmonary Care

Learn about the most important aspects of pulmonary care from the perspective of two affected teens.

CMD Blog

News, Stories and Events by and for the CMD Community