Parents Raise Money for Rare Disease Research Through the Million Dollar Bike Ride at PENN Orphan Di

Parents of children and young adults with the rare disease Congenital Muscular Dystrophy (CMD), Susan Lee-Miller, Andy Parks, and Diane Smith-Hoban, are spending the next seven weeks preparing for the 5th Annual Million Dollar Bike Ride (MDBR), to be held in Philadelphia on May 20th. The bike ride, hosted by the Penn Medicine Orphan Disease Center (ODC), is a 13-, 34-, or 72-mile route through the Greater Philadelphia region, and has raised more than $6.4 million for rare disease research since its inception in 2014. Lee-Miller, Parks, and Smith-Hoban each have a child affected by Collagen-VI Congenital Muscular Dystrophy (CMD), so they are riding with Team Cure CMD. Their goal is to raise $

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Cure CMD is U.S. registered 501(c)(3) non-profit organization. Donations are tax deductible to the
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