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Cure CMD's Legislative Advocacy Team strives to bring awareness about congenital muscle disorders to legislators, and advocate for our community's needs at the federal, state, and local levels of government. Members of the team are empowered to tell their story at advocacy events and by communicating with representatives to enact legislative change. We support legislation that provides access to affordable healthcare, employment, education, and travel to those affected by CMD. Additionally, we champion the funding of research, especially at the National Institutes of Health (NIH) and the Food and Drug Administration (FDA), that will lead to treatments for CMD and other rare disorders.
2023 Advocacy Series Connect with Your Legislators.jpg
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